As you can see below Ben has been busy this weekend with Purple man out and about in Southampton raising money for Piam Brown ward.
Sorry for the long gap between posts, this will make up for it.
Lewis's friend's also raised lots of money over the last month and I will post the details this week, just waiting for the photos to come in.
last week was not too bad as Lewis managed several days at school. He got to worn out towards the end of the week and went in on Friday for a blood transfusion. This lead to some energy to go out for the night.
Lewis, Mum and me (Dad) went to Pizza Express for dinner and then on to The Anvil to see Billy Ocean. Lewis only managed through to 10-30 so we left and got him back to bed.
We had a quiet weekend to recover as we were off to Piam Brown for a CT scan this morning, Lia came along to see what it's all about and we should have the results in later this week. Fingers crossed we will have good news.
Lewis had bloods done today and yes youv'e guest it, there too low to start Chemo today, we must wait till Thursday. All being well Lewis will be in on Monday for one week Chemo at Southampton.
Anyway back to school in the morning for Lewis, he's looking forward to Red Nose Day for a sleep over.
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mmmmm Pizza Express mmmmm (Mia's favourite)
ReplyDeleteGreat to hear that you managed to get to see Billy Ocean and 10.30 is a very respectable time to dip out (Mia only made it to 8.30 at the panto!)
Blood transfusions and low levels again! Still I guess it means a couple of extra days chilling at home or maybe at school. Hope all goes well for next week and CT results are good XX
Purple Man....Priceless, absolutly loved it, was thinking maybe Ben and Dad purple man duo!!!
Take care, Thinking of you all Michelle, Mia and family XXX