Tuesday mum and Lew got up early and were out by 7am on the way to Southampton for more Chemo. When they got there Lew was seen by the Doctors and ENT (Ears nose and throat) specialist. He put a camera up Lewis's nose to see if he could find a reason for his funny voice.
Then he had two procedures, a Lumber puncher and Bone marrow taken again. This took half hour or so, mum went to get a coffee. Lewis woke up and had his baguette, he is always hungry after an op.
He had his bloods done and his Platelets are only 76 which is low so we need to keep an eye on them. I will do a blood lesson in my next post for anyone who wants to know about them.
Time was moving on and before they knew it, it was 3-30pm, Lewis was set up for his Chemo, it has now changed and he was given Cyclophosphamide 'don't ask'. He was also given Cytarabine and will have to have that for 4 days a week for 4 weeks. He is also having Mercaptopurine everyday. All the drugs are part of the Chemo and all treat his Cancer.
He has been cutting down on the steroids and seems to be a bit happier and not eating as much. His torrets has gone.
Today we had a visit from the children's nurse to give him his Cytarabine but she had problems so he had to go up to the hospital to have it. She will be back tomorrow.
Lewis was off school today because yesterday was a very long day and it takes it out of him, also the drugs make him tired.
My Dad has started his training for the 10k run www.bupa10k.blogspot.com
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Just reading about the funny voice.... Did they find anything??? Mia's voice was funny when first diagnosed and treatment started, she became bit squeeky and mouse like, I have a feeling it is the steroids (We seem to blame them for everything...I know) She also became very focused on pronouncing words correctly and made sure to say TH instead of f, she' been doing it again this week. Glad the steroids have started weaning, it does make a huge difference within just a few days, Mia had her last dose this evening HOORAY. We also get to start Cyclophos and cytarabine on 3rd Feb, I have read that they can cause quite bad nausea and vomiting so it's worth persevering with the anti sickness meds even if it's a battle. Today is officially hairloss day in our house Mia has been on treatment for 4 months and managed to hang on to a bit of a hairstyle but it is now coming out in clumps... she is sure to be bald next time we see you (She thinks it's funny!)... Enjoy the smiles Michelle XXXX
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